Anencephaly is a serious life-limiting condition where the baby’s brain and spinal cord (the fetal nervous system) do not develop properly. This is a very serious condition where large parts of the baby’s skull and brain are missing. The baby’s face and neck may also be affected.

Read all about anencephaly here.

Shine is a national charity that supports parents with a pregnancy affected by anencephaly. This charity can be accessed here.